F9 What is your biggest concern about allowing these kinds of information sharing?
That there's confusion or lack of knowledge if it ever has to be used
People not following the correct procedures in relation to keeping it secure
This information is confidential and is not for sharing with other people without consent.
Being passed on to other people who I haven't given consent for
The organisations have too many people who can access confidential data
Lack of confidentiality who could see and use the data
Wrong people might use the information. It is personal security
People get hold of personal information and misuse information elsewhere
Would be worried about others getting my medical records
Nobody should have your information, only doctors and hospitals, it might get into the wrong hands.
That they got into the wrong hands or leaked out
Access could be given to people without being checked
Say I had, I wouldn't want my children stigmatised because the teacher knew this
Everybody likes to keep information unless it is necessary for others to know
It would encourage too many to claim benefits, when we can't prove something is wrong with them
It might be passed to the wrong person for the wrong purpose
Misused, it may get into the wrong hands
Misuse of information or getting into wrong hands
Don't want information shared with teachers etc.
Too much information get passed around on us, just don't like it
The information passed on to the wrong people
Wrong people might get hold of personal information.
Random people finding out your personal stuff
Too many people having access to my information
Information being stolen, altered or misrepresented
Might be treated differently by teachers causing social problems
Not sure they won't pass it on to someone
People know too much about you now a days
I don't have concerns at all, I am 79 years old.
Trust want to be held with privately with GP
It could be passed on to outside companies and organisations
Don't really have any concerns because I don't use a computer and I don't use my mobile phone for shopping etc.
My information would get into the wrong hands
Receiving unsolicited phone calls, mail and emails trying to sell me something
Would rather have my information kept quite
Information gathered can be used against individuals unfairly
Name and details with telephone numbers and even bank details
Too much information is already available on us
Information isn't clear and agreed, for example with parents and with what needs to be done in what circumstances
Misuse of the information or the wrong people seeing it
Your patient should have complete control over these things, or you would lose their trust
Information or personal details could be wrong, lost along the way, insufficient or unclear detail given to be effective, details not updated when necessary.
Data protection can be abused in many ways which causes me concern.
Should be up to the parent about illnesses in the family
The confidentiality would have to be uppermost
I think what is meant to be a benefit could end up working zags ins the child
As long as someone there to administer proper care, but not without consulting parents or guardians of child.
It's being sold and subsequently tortured on the telephone landline
It's up to the parents to do that and not the GP
It is up to the parents to give this information
Sales being targeted instead of research.
Getting unsolicited phone calls and letters trying to sell me something
Loss of personal information before it gets to the school
It would put a lot of ones on the school, there may be parents who don't want to divulge the information
I think it is up to parents to inform the school about a child's medical condition
Sensitive information about the business I run might fall into the wrong hands and damage my business
The confidentiality, then the patient doctor relationship may be compromised eg; damaged trust
It should be passed on by the parent or the guardian. It is a breach of the child's rights and confidentiality.
It's confidential and the parents should have the right to pass this information on
Too many would have access to your information
They are going to people who are not medically trained or bound by an oath of confidentiality
Do they really need to know that information, the parents would have already told the school
If it can go to a school, then it would be out in the open for anybody to have access to
The GP should only give information if the parents allow it
Its getting lost or sent to the wrong place
My bank information might be hacked. Would not want others to know about my medical condition.
They might get access to my bank account and remove money
Being pestered by call centres trying to sell me something
There are people who can hack information
Loosing the data to someone who shouldn't have it
Many people out only to make money this may provide cash for Cowboys
It would be used for something not beneficial
My details falling into the hands of scammers
If there is no permission from the patient, then might feel exploited in some way
That the school could use this information to refuse a place to my child
Data can be lost or the information can be mislaid
They use the information to sell health products I don't need or take money from my bank account to pay for services I really don't have to have. Information used for increasing sales.
In case it's used wrong and the wrong people get it
Would not want everybody having access to my information
Too many people knowing too much about you
I don't think they should, it is up to the parents
Misinterpretation and used to abuse the person, i.e. private/personal information could leak into the public realm to the detriment of the individual
Passing on information without permission
Selling information to companies against my knowledge or will
My bank details might get into the wrong hands
Big brother knowing every thing about you
Heed isn't taken to it, if needed so it's a wasted exercise
It is parents or family to pass on this information
Any information should only be passed on (except in the case if emergency) with consent due to the individuals right to privacy.
Any public bodies can then discriminate against the child
Receiving unsolicited phone calls and emails trying to sell me goods or services
Some people prefer their information to be kept private
I don't think UK will be able to provide secure sites for all the personal data they wish to hold
That it would fall into the wrong hands.
The information might get into the wrong person
It's nobody's business and there is potential for it to get into the wrong hands.
You cannot always trust a GP or school authorities
It's the parent decision to give that information.
That your private information will go somewhere you don't want it to go very easy for wires to get crossed
Some issues are very personal and should not be passed on without their consent
They could get lost or into the wrong hands
The accuracy of records and passing on data to other organisations
Data should be held in confidence, if it needs to be shared the patient should be consulted first.
Its a personal choice for disclosing that
Confidentiality, patients autonomy to share information.
Could get to the wrong people or be about the wrong people
Don't think that should happen because I would not be sure how secure that information would be
Lack of security- information being used by third parties for personal gain or invade your privacy
What concern is it of anyone other than the child's parents
The parent should do all that about their child
Information misappropriated, teacher not accountable or is unable to fully understand the information available
People knowing personal details about me
To protect children, GP's should update schools about things like bruises etc. that re-occur.
That the effort is wasted by, it is not being properly acted on.
Eventually everybody gets to know everybody's business
How secure it would be and who is going to get it
This would override the parents responsibility
It might not be secure and might affect my current benefits
People misusing medical records and information being passed around without accountability
Doctor should consult with the person first
Too much information on me personally, I have high concerns about
In case it was not genuine people that it was being passed onto
Health information is personal and should be kept between the patient and the GP
It would get mixed up with other people's information or would generate junk mail or maybe someone trying to sell something.
It might get into the wrong hands, it should be up to the parents to inform the school
Takes away my rights to choose who has my information
The right information isn't received in reliable and timely fashion
That it doesn't get to the right people so is ineffective if it needs to be used
It will fall into the wrong hands and can be used against me, or the lists sold to sales people.
Nothing to do with the benefit offices or schools and might be wrongly used
Copper fastening where the information goes
Where does it end up, money talks, information is power
Could be used against people in some ways
That unrelated information is also passed
Stolen identity, access to bank accounts
That it would be secure and used against theft
That would be down to the parents to share that information. I would be concerned that the information would be misused and other companies would target people selling eg: insurance.
I think it's the responsibility of the parent
That everyone would see it and not everyone needs to
It might get into the wrong hands and the child be discriminated against
Someone losing it and it's up to the parents
If a child is getting mental medication for the short term it would be held against them for life
Local people who works in these organisations know your information
Fear of hackers getting people's information and robbing accounts
Not sure just don't trust people to be careful with this information
Somebody using it that doesn't have the right too
Just thinking of schools if the wrong person answered the phone and got the information
Gossip things being viewed by people who don't need to know
Bank details requested all too often. I have a big concern what and where these details go, and when they are being misplaced.
As long it is given to the teachers only and the child gets the proper care
If there is any accuracy in it, then would want to know if it is correct
Ability to get insurance and data being passed on to third parties
The personal information could get into wrong hands
The information may fall into the wrong hands and hold the child back
People who should not know, knowing what was wrong with me
I think it could be a problem with how the information is passed on
That the information gets to inappropriate people or organisations to use illegally
Just don't want other people knowing my business
That information gets into the wrong hands
Personal data that is sold on for commercial gain
Information only for those who need to know, on if and when basis
When the information is sold to commercial operations for profit
Identity fraud or access to bank accounts
People knowing your business, it would be spread all over the canteen
There's all kinds of everybody working in schools. I don't think schools have the same data security practices as you go to surgery etc.
The child may be treated differently, it should be the parents who make the decision to inform the school
It gets into the hands of the wrong person and also details could get mixed up. Not everyone would want their private business risked in this way.
I think it should be up to the parents to notify the school
That who gets it and I think people make money off it
Passing information on to the wrong people who would use this against me
The concern would be who has access to the information
Who has access to this information and how it is controlled by the school
Governing body for mass surveillance in the UK, they are mass invasion of privacy
I don't see the need for it, there could be a risk of miss information being passed on
It would leak out and hacking. Someone would tell someone else
It might get into the wrong hands and used for no good.
A trust issue you don't know where your information is going
People receiving information that they are not meant to have
My data could be disclosed on social media
Schools should seek this information from parents
This information will be used by employers against people looking for work or wanting a visa to stay in Ireland
That it gets mixed up somewhere along the line
Others knowing private health information about me