Background
to the
Research
- During the twentieth century,
rapid developments have occurred in relation to genetic knowledge
and understanding, the pace of which has often been underestimated.
- As a consequence of media
coverage regarding genetically modified crops, cloning of animals
(for example, Dolly the sheep), the Human Genome Project, and more
recently, the cloning of the first human embryo, the terms genetics
and genetic engineering are now familiar to the majority of adults
in the UK.
- Whilst NI is part of the
UK, it has a very distinct identity and strong cultural traditions
that have been repeatedly shown to influence social attitudes across
a wide range of topics.
- This chapter reports some
key findings from the Attitudes to Genetics Research module included
the 1999 NILT survey. The main topics covered were levels of trust
in various sources of genetic information, attitudes towards the use
of genetic tests by insurance companies and employers, and in making
decisions about abortion.
Research
Approach
- The data used by the authors come from
the 1999 NILT survey which began in 1998 and is carried out annually.
- Each year, interviews are carried out with
a random selection of adults (aged 18 years and over) who live in
private households in NI.
- The sample size for the 1999 NILT survey
was 2,200 - although some modules were asked of only half the sample.
- Half the sample were asked the questions
on genetics.
Main
Findings
- Respondents were most likely to trust scientists
working in health research charities to provide them with information
on the dangers of research into human genes and least likely to trust
journalists working in national newspapers
- Almost one in ten respondents (9%) say
that someone in their family has a serious genetic condition.
- The majority of respondents feel that genetic
tests should not be used in accepting people for, or pricing, life
insurance policies (77% and 78% respectively).
- Most respondents oppose the use of genetic
tests, or a consideration of the results of any genetics tests, by
employers. The suggestion that an employer should have the right to
make an applicant for a job have a test was opposed most.
- 46% of respondents support the view that
genetic tests should be available to all pregnant women and 41% that
tests should only be available to those women with a special reason
to suspect a problem. Only 8% feel that tests should not be available
at all.
Conclusions
- The findings from the NILT survey confirm
that members of the public have strong opinions about genetic developments
and demonstrate that, overall, attitudes to genetics in NI are similar
to those reported by surveys carried out in Britain and America.
|