Module: Data Sharing and Privacy

This page lists the questions asked within the Data Sharing and Privacy module, and for which years. Clicking on the year printed after every question will bring you to the results for that year. Publications and further information on Data Sharing and Privacy can be found on the Data Sharing and Privacy Resources page.

 

TRUSNHS: How much do you trust the NHS to keep your information secure? 2015 2020

TRUSGOV: How much do you trust government departments to keep your information secure? 2015 2020

TRUSGP: How much do you trust your GP to keep your information secure? 2015

TRUSCOM: How much do you trust commercial organisations to keep your information secure? 2015

TRUSACAD: How much do you trust academic researchers to keep your information secure? 2015

TRUSCHAR: How much do you trust charities to keep your information secure? 2015

CNDATA: Have you had any particular concerns about how any of these organisations use their data? 015

CNDATA1 - CNDATA9: Particular concerns about how organisations use their data. 2015

ELREC1: Is it acceptable to that GP records are automatically available to A & E departments? 2015

ELREC2: Is it acceptable to that GP records are automatically available to hospital consultants? 2015

GPSHARE1: Should GPs be allowed to share information about a physical illness to other government departments? 2015

GPSHARE2: Should GPs be allowed to share information about a mental illness to other government departments? 2015

GPSHARE3: Should GPs be allowed to share information about a child's health condition to schools? 2015

LINK1: Do you think university researchers should be allowed to use linked data (1)? 2015

LINK2: Do you think university researchers should be allowed to use linked data (2)? 2015

LINK3: Do you think university researchers should be allowed to use linked data (3)? 2015

CONSENT1: Do you need individual consent before using linked data? 2015

SAFEG1: How important is it in academic research that the research must have a clear public benefit? 2015

SAFEG2: How important is it in academic research that names must always be taken off? 2015

SAFEG3: How important is it in academic research that the researchers must be approved? 2015

SAFEG4: How important is it in academic research that very project must have official approval? 2015

SAFEG5: How important is it in academic research that the researchers have to go to one of the dedicated secure data centres to do their analysis? 2015

SAFEG6: How important is it in academic research that the statistical results of the research must be made public? 2015

SAFEG7: How important is it in academic research that there are penalties if researchers breach data security? 2015

COMSAFEG: Should research by commercial organisations be subject to the same safeguards as university research? 2015

PHARMA1: Should a drug company be allowed access to some patient information? 2015

PHARMA2: Should a drug company be allowed access to some patient information if they pay a fee? 2015

PHARMA3: Should a drug company never get access to patient information? 2015

PRIVACY1: Do you agree or disagree that you don't care who uses your data? 2015 2020

PRIVACY2: Do you agree or disagree that the right to privacy has to be respected over everything else? 2015 2020

PRIVACY3: Do you agree or disagree that you don't mind how your data is used as long as names and addresses are taken off? 2015

PRIVACY4: Do you agree or disagree that even if you take the names off data you can often still tell who it is from other information? 2015

PRIVACY5: Do you agree or disagree that if data can be made anonymous then it should be used where there is a benefit to society? 2015

PRIVACY6: Do you agree or disagree that you don't want university researchers to be able to use your personal data at all? 2015

Questions related to data privacy were also asked in the 2020 COVID-19 module.


Maintained by Paula Devine

Disclaimer:© ARK 2003 Last Updated on Tuesday, 25-May-2021 15:33